I’ve told Cora’s story in front of federal advisory committees, state-level legislative committees, parent advocates, and dates with several hospitals are in the works. I’m available to talk about my experience with Cora, my work in her name, and my viewpoint as a parent to a baby that passed away from congenital heart defects. My …
I’ve loved writing since I could first scribble out my own name. I remember quietly sitting in a corner writing stories when I was still a young child. When I was in middle school, I designed a website and started a newsletter about a college basketball team. Eventually, that website was reviewed in the Washington …
In November 2009, I gave birth to my first daughter, Cora. She lived only five days, but her life means that I’m forever a mother. She changed me, and how I see the world. I don’t tuck Cora in at night or comfort a crying toddler, but I do still mother Cora. I work to …
Within weeks of my daughter’s death, my new role became clear. I would speak for these babies without a voice. I would help their mamas. I’ve been a proud advocate of newborn health since 2009. My focus has largely been on newborn heart screening, or pulse oximetry. I successfully advocated for legislation in my home …