Within weeks of my daughter’s death, my new role became clear. I would speak for these babies without a voice. I would help their mamas.
I’ve been a proud advocate of newborn health since 2009. My focus has largely been on newborn heart screening, or pulse oximetry. I successfully advocated for legislation in my home state, Indiana, which made pulse oximetry law in April 2011. I’ve helped other parents in other states work to make pulse oximetry the standard of care in their state as well through my grassroots organization,Pulse Ox Advocacy.
My current interests are screening for congenital heart disease prenatally and shortly after birth, newborn screening and any issue that affects the health of infant from conception through the first year of life.